This project has allowed me to witness and often share in a huge range of emotions and it has helped me see the disparities that often lie between what is thought and what is truly understood. It has helped me see the good in the bad and the bad in the good and it has enabled me to realise and to question so many things that perhaps have been reluctant to realise and question before… (I must emphasize that the following is my personal thinking and refers to no person or persons in particular)
Why must people continue to suffer when often there is so very little hope?
What sort of life are they really having, and how is it helping them to go on when going on becomes so painful and without comfort. Is there a choice?
How can patients remain persons and recognised as individuals once they enter the ‘system’?
How can nurses trained in an environment where the prolonging of life is a primary factor come to terms with the idea that managing what they can to help a patient move forward, even if that is towards a peaceul death, is a good one?
How, where even adequate staffing is not necessarily a sufficient condition for compassionate good patient care, can inadequate staffing ever be considered as such?
Someone said, ‘there is a tendency among some staff to treat sick people on the ward as if they have dementia ‘ – I have seen this.
Quality or quantity? – I am sure I would choose the former but is there a point at which…?
Is the problem about choice where there seems to be none?
Someone said, ‘they help you to suffer ( the treatment is often, and very evidently, worse than the disease itself in terms of the negative effects on the body and mind) but they don’t help you to feel better while you are suffering.’
When is it too much?
When should you stop?
Is/should euthanasia be an option?
When does ‘institutionalism’ set in?
How are the dynamics of end-of-life care played out in regard to the need to ‘be there’ for vulnerable patients and their families?